Monday, April 26, 2010
Waterproof Masacara...
Waterproof mascara is good for many things and many reasons but is definitely not for two-year olds.
Friday, April 23, 2010
Good News!
It's just a cold. Have you ever looked forward to hearing those words?! I took Kinzie in today rather than our scheduled appt on Monday just to see before the weekend hit. Her fever is holding at 100.2 F but she got even more congested last night. So I packed up the car with a crazy 2 year old and my sick, sleepy, angelic 3 month old (yes, that's right 3 months already). I will never do that again. Emma has always gone to a friend's house to play so this was the first time to the doctor's with me. "Oh My!"
Anyway, first we went to the lab to have her blood drawn for a sodium check which by the way finally reached the right level last week. This time was to see if we need to maintain the dose of saline or back-off a bit.
Next, we went to the doctors and found that the urine analysis UA looked great and thus this is probably not a UTI! yeah. Her lungs sounded good, her fever was still there but doctor ruled it just a cold! Emma is already over it so hopefully Kinzie will be soon too.
Also, the SUPER GREAT NEWS: In four days she has gained 2 oz PER DAY! Now weighing in at 10 lb. 14 oz. Yes, that is 2 away from 11 lb! It's also 1 lb. more than Emma when Emma was born! Yikes! So we crossed from the 19% into the 20% percentile for weight.
Anyway, first we went to the lab to have her blood drawn for a sodium check which by the way finally reached the right level last week. This time was to see if we need to maintain the dose of saline or back-off a bit.
Next, we went to the doctors and found that the urine analysis UA looked great and thus this is probably not a UTI! yeah. Her lungs sounded good, her fever was still there but doctor ruled it just a cold! Emma is already over it so hopefully Kinzie will be soon too.
Also, the SUPER GREAT NEWS: In four days she has gained 2 oz PER DAY! Now weighing in at 10 lb. 14 oz. Yes, that is 2 away from 11 lb! It's also 1 lb. more than Emma when Emma was born! Yikes! So we crossed from the 19% into the 20% percentile for weight.
Thursday, April 22, 2010
Fever
Well, the day I have been waiting for has come - Kinzie has a fever. I routinely check fearing a UTI or RSV. Emma came down with a green, runny nose these last couple days and Kinzie quickly followed but the fever came yesterday. 101.6 F So I started with the Tylenol treatment every 4 hours and "Menthelatum socks" and it's down to 100.2 F. We may be going back in today to check for UTI and lungs. I did put her O2 back on yesterday and last night as her breathing was kind of labored. She belly breathes most of the time anyway but now seems to gag like she's trying to get more air. The good news is that she did not throw up yesterday and has been pooping like crazy! She has also been emptying her bladder very well on her own. My cathing usually comes up empty.
Now in answer to some questions, mainly my good friend Jodi's who has walked this path too and to whom I truly appreciate her insight!
1. She is on prophylatic antibiotics for the cathing as it introduces bacteria itself.
2. I cath her every 8 hours but she has often already peed on her own.
3. She has had barium swallow tests showing penetration of the lungs on anything less that thick consistency.
4. She has had a PH probe test to measure the reflux -shows mild but was done while on Prevacid so probably worse before that - currently on max dose of Prevacid which causes constipation too.
5. She has had an upper GI xray test to check that the sphinter valve into tummy works right. It did.
6. She then had renal ultrasound to check that kidneys were fine - they were.
7. Did VCGU to check for reflux into kidneys. She did not but discovered the neurogenic bladder. She had been just fine until the UTI.
8. We currently have an ultrasound scheduled to check the Pyloric sphinctor into intestine but are waiting since Pyloricstinosis usually manifests in boys and in the first 6 weeks or so. If the throwing up starts again when we start bottling again we will check it.
9. We briefly talked about a fundoplication when we thought we were putting a g-tube in but said there was not yet enough evidence from GI to warrant doing it. We don't want it if we can prevent it but just now have really begun to explore her GI issues and need more time to determine.
Thank you Jodi for all your insight. Keep it coming because I get stumped on what to evn ask to try next.
Now in answer to some questions, mainly my good friend Jodi's who has walked this path too and to whom I truly appreciate her insight!
1. She is on prophylatic antibiotics for the cathing as it introduces bacteria itself.
2. I cath her every 8 hours but she has often already peed on her own.
3. She has had barium swallow tests showing penetration of the lungs on anything less that thick consistency.
4. She has had a PH probe test to measure the reflux -shows mild but was done while on Prevacid so probably worse before that - currently on max dose of Prevacid which causes constipation too.
5. She has had an upper GI xray test to check that the sphinter valve into tummy works right. It did.
6. She then had renal ultrasound to check that kidneys were fine - they were.
7. Did VCGU to check for reflux into kidneys. She did not but discovered the neurogenic bladder. She had been just fine until the UTI.
8. We currently have an ultrasound scheduled to check the Pyloric sphinctor into intestine but are waiting since Pyloricstinosis usually manifests in boys and in the first 6 weeks or so. If the throwing up starts again when we start bottling again we will check it.
9. We briefly talked about a fundoplication when we thought we were putting a g-tube in but said there was not yet enough evidence from GI to warrant doing it. We don't want it if we can prevent it but just now have really begun to explore her GI issues and need more time to determine.
Thank you Jodi for all your insight. Keep it coming because I get stumped on what to evn ask to try next.
Wednesday, April 21, 2010
Easter Hunt
Cale took Emma to the Easter Egg Hunt this year and I stayed home with Kinzie. They ran into some friends of ours and their daughter Shandelle who Emma ran up to and hugged. Long lost friends I guess! :-) Emma did much better at the race this year but still seemed to not quite understand the point. She just liked to run with all the kids. She did find two eggs, and two more that Cale gave her and then of course she got a new sister!
Getting Ready!
Eyeing the targets!
Mission successful!
Best Egg of All!
I finally got around to dressing my girls in their Easter dresses that my mom bought for them. The yellow blanket was made by Cale's mom - she makes beautiful blankets! Also there are more pics of Kinzie only because she doesn't care if I take her picture! :-)
These last two pics are right after Easter. My mom came back to help me for a week (thank you, thank you) and we were so busy that this was the only pic I got with all three of them in it. The top pic is of the shirts I got the girls, "Big Sister and Little Sister." Pretty cute. Emma loves to have them wear them at the same time. 
These last two pics are right after Easter. My mom came back to help me for a week (thank you, thank you) and we were so busy that this was the only pic I got with all three of them in it. The top pic is of the shirts I got the girls, "Big Sister and Little Sister." Pretty cute. Emma loves to have them wear them at the same time.
Tummy troubles
Poor little Kinzie had to go back to the hospital for x-rays of her tummy on Monday. Sunday night I noticed that her tummy looked really distended and hadn't noticed before if that was normal for her so Cale and I started debating whether to take her into the emergency room Sunday night or wait it out. We were fearing a bowel blockage. He and our neighbor gave her a blessing and we finally decided to wait. Our doctor sent us in the next day for an x-ray. It showed a lot of gas blocked by a little more poop as well as streaks in her lungs. So two treatments.
1st since she is back to pooping reguarly and actually pooped and passed a lot of gas while at the doctors office the doc felt that she would fix it herself by pooping and farting more.
2nd we are stopping any attempts to bottle feed and continuing to strictly use only the feeding tube. I had been using only the tube this lst week anyway but when we start bottle feeding no early than one week but maybe longer we will thicken even more to honey consistency just in case the streaks in the lungs are from aspirating.
Yesterday she was throwing up every feeding and two times in between feedings but is yet to throw up today. She still gags and chokes a lot though ad nI fear she is swallowing that down the lungs but the upside is that the coughing and gaggging could just be her trying to clear out her lungs herself. The kicker is that for her once she coughs or gags, whatever is in her tummy is coming up too!
The good news. We finally gained some weight. She nows weighs 10 lb. 10 oz. up from 10 lb. 5 oz. 6 days ago. She is 22 1/4 inches long which puts her in the 16% for weight and 19th % for height.
1st since she is back to pooping reguarly and actually pooped and passed a lot of gas while at the doctors office the doc felt that she would fix it herself by pooping and farting more.
2nd we are stopping any attempts to bottle feed and continuing to strictly use only the feeding tube. I had been using only the tube this lst week anyway but when we start bottle feeding no early than one week but maybe longer we will thicken even more to honey consistency just in case the streaks in the lungs are from aspirating.
Yesterday she was throwing up every feeding and two times in between feedings but is yet to throw up today. She still gags and chokes a lot though ad nI fear she is swallowing that down the lungs but the upside is that the coughing and gaggging could just be her trying to clear out her lungs herself. The kicker is that for her once she coughs or gags, whatever is in her tummy is coming up too!
The good news. We finally gained some weight. She nows weighs 10 lb. 10 oz. up from 10 lb. 5 oz. 6 days ago. She is 22 1/4 inches long which puts her in the 16% for weight and 19th % for height.
Thursday, April 15, 2010
Slow progress
Kinzie has been up and down as far as progress goes. She was extremely backed up last week due to all the rice we had been adding to her bottles. So we switched to oatmeal, added Karo and finally had to use suppositories. It took a day and a half to clean her out. In the mean time her throwing up had gotten worse. She was to the point of throwing up every bottle and most of it. So we put the tube back in at the same time we started the suppositories. It now appears that she was throwing up due to the constipation and being unable to move the milk out of her tummy. She had a couple good days after getting cleaned out but now is back to throwing up frequently. it is not large volumes but still too frequent and she is still fed only via NG tube. So what now? I'm not sure.
The good news is that we had some progress on Tuesday at her last doctor's visit. She was able t take off the oxygen and we are currently just monitoring her color change to see if she can really do with out it. So far so good but does seem pale at times. Don't know if increase throw up could be related.
She is now 10 pounds 6 oz. Up 1 oz. Good but way too slow of growth. She is now 23 inches long. She is still on the apnea monitor. We meet with that team next trip to PCH in May to see if we will continue to use it.
My mom was here last week and was an amazing help. It is so exhausting to not only due all her cares but also try to troubleshoot them and think of new things to try and new ideas to rule out. Thanks Mom! We MISS you! FYI: anyone who would like to come visit, feel free! lol
I did finally get pics taken in the Easter dresses that my mom bought but will post later. We have also decided to bless Kinzie on May 2nd. You are all invited. lol
Please keep her in your prayers and us that we will figure out how to help her grow. We will begin having a development therapist come in each week to help with alertness when awake, vision (tracking), and another with eating/nutrition issues. I look forward to one-on-one help and pray for guidance and answers!
The good news is that we had some progress on Tuesday at her last doctor's visit. She was able t take off the oxygen and we are currently just monitoring her color change to see if she can really do with out it. So far so good but does seem pale at times. Don't know if increase throw up could be related.
She is now 10 pounds 6 oz. Up 1 oz. Good but way too slow of growth. She is now 23 inches long. She is still on the apnea monitor. We meet with that team next trip to PCH in May to see if we will continue to use it.
My mom was here last week and was an amazing help. It is so exhausting to not only due all her cares but also try to troubleshoot them and think of new things to try and new ideas to rule out. Thanks Mom! We MISS you! FYI: anyone who would like to come visit, feel free! lol
I did finally get pics taken in the Easter dresses that my mom bought but will post later. We have also decided to bless Kinzie on May 2nd. You are all invited. lol
Please keep her in your prayers and us that we will figure out how to help her grow. We will begin having a development therapist come in each week to help with alertness when awake, vision (tracking), and another with eating/nutrition issues. I look forward to one-on-one help and pray for guidance and answers!
Friday, April 9, 2010
Update on Kinzie
We went to Phoenix on Tuesday for the first of many monthly follow-ups. We saw neurology, GI, and urology.
GI was first. She had gained 1 oz now weighing in at 10 lb. 5 oz. and was 20.5 inches or so. She is kind of short so she still looks chunky but if you compare early pics to now, her double chin is shrinking. They changed her formula to one of the most expensive on the shelves - Alimentum. My pediatrician though had a case load of Nutramigen samples and so we switched her again once we got home and talked to her. Both run about $27 for a small can. They are hypoallergenic so hopefully they will stay down better. Also we are adding oatmeal instead of rice to see if she has a rice allergy. We are still thickening to nectar for reflux. She can handle thick consistency though for swallowing. She is also extremely constipated from all the rice and so as of today (we were in phx on Tuesday) she just passed the stool. We did have to use a glycerin chip though.
Neurology was next. Same old - they know nothing but I did like the doctor that we will be seeing. She knew Kinzie's case well and told us to treat her as any other baby. Nobody knows that their kid will walk by a year old - they just assume and we should too. We do need to stimulate her more to get her more awake though but that may happen if we can straighten out the food issues. We will return at 6 months for an MRI and an EEG in 1 or 2 months.
Urology was last and the one we were most looking forward to as I was still cathering her every 6 hours to help alleviate the urine buildup in her bladder. However, they did the test and found little info. Basically they slowly fill her bladder and monitor the pressure with a probe and see at what pressure her bladder releases. The only problem was that her bladder did not release the large amount they put in. He stop the test at a 100+ cc and determined that she has a large bladder. He does think from my notes that she does empty the bladder completely when she goes, but is still not sure why she goes so long in between emptying. We return in 1 month for consult and will repeat the study at 6 months.
She is also being evaluated for therapy and assistance by the following programs: Northland Therapy, NICP (for being in NICU), SSI, DES, and DDD. More to follow when those are approved and kick in.
GI was first. She had gained 1 oz now weighing in at 10 lb. 5 oz. and was 20.5 inches or so. She is kind of short so she still looks chunky but if you compare early pics to now, her double chin is shrinking. They changed her formula to one of the most expensive on the shelves - Alimentum. My pediatrician though had a case load of Nutramigen samples and so we switched her again once we got home and talked to her. Both run about $27 for a small can. They are hypoallergenic so hopefully they will stay down better. Also we are adding oatmeal instead of rice to see if she has a rice allergy. We are still thickening to nectar for reflux. She can handle thick consistency though for swallowing. She is also extremely constipated from all the rice and so as of today (we were in phx on Tuesday) she just passed the stool. We did have to use a glycerin chip though.
Neurology was next. Same old - they know nothing but I did like the doctor that we will be seeing. She knew Kinzie's case well and told us to treat her as any other baby. Nobody knows that their kid will walk by a year old - they just assume and we should too. We do need to stimulate her more to get her more awake though but that may happen if we can straighten out the food issues. We will return at 6 months for an MRI and an EEG in 1 or 2 months.
Urology was last and the one we were most looking forward to as I was still cathering her every 6 hours to help alleviate the urine buildup in her bladder. However, they did the test and found little info. Basically they slowly fill her bladder and monitor the pressure with a probe and see at what pressure her bladder releases. The only problem was that her bladder did not release the large amount they put in. He stop the test at a 100+ cc and determined that she has a large bladder. He does think from my notes that she does empty the bladder completely when she goes, but is still not sure why she goes so long in between emptying. We return in 1 month for consult and will repeat the study at 6 months.
She is also being evaluated for therapy and assistance by the following programs: Northland Therapy, NICP (for being in NICU), SSI, DES, and DDD. More to follow when those are approved and kick in.
Emma turned two years old on February 29th. yes I realize that day does not exist this year...or last year; thus, it didn't really matter what day we celebrated her birthday (and because she doesn't know any different). So we waited until we were all home together again and did it when my family and cal'es family could be here too. We played "pin the tail on the donkey," broke my sister's well-stuffed 16th bday pinata that she brought from Texas for the event, opened presents and had cake and icecream. The theme was butterflies to go along with her room. 
It took some explaining but eventually she switched from tears over breaking the pinata to glee! The candy was the trick. If you listen carefully, she yells "All my candy" as she dives into it.
It took some explaining but eventually she switched from tears over breaking the pinata to glee! The candy was the trick. If you listen carefully, she yells "All my candy" as she dives into it.
Just some more fun pics of my family. They all came up to welcome us home to our house! Emma loves Kinzie. SHe doesn't understand how rough she can be though. She gets so close when trying to lay by her that she lays on her. Or she goes to give her hugs and ends up squeezing the air out of her! 
It got really quiet one day while I was doing dishes so I went looking for Emma. This is where I found her...on the couch reading to Kinzie! So cute. It melted my heart. Emma was of course breaking something two minutes later. good thing for the cute moments that keep mom's loving their children despite the terrible two's!
Sunday clothes. Emma went...Kinzie did not...but they looked cute.
Emma loves to give Kinzie her bath. She really rubs her raw though! :-)
It got really quiet one day while I was doing dishes so I went looking for Emma. This is where I found her...on the couch reading to Kinzie! So cute. It melted my heart. Emma was of course breaking something two minutes later. good thing for the cute moments that keep mom's loving their children despite the terrible two's! 
Sunday clothes. Emma went...Kinzie did not...but they looked cute. 
Emma loves to give Kinzie her bath. She really rubs her raw though! :-)
We were so excited to go home but it was so hard to say goodbye to all our friends. 
This is Dr. Carballo. She loves Kinzie and was so concerned for her. We appreciated everything she did for her. She listened to us and our concerns and explained things over and over.
This is just a few of the amazing people that worked with Kinzie. They were all so gentle, loving, and genuinely concerned. Never have I seen so many dedicated medical professionals who truly know each patient.
This is Rosalyn and her daughter Abby. We became good friends sitting side be side by our daughters day after day. We wish them the best. She gave Kinzie the cute outfit that she is wearing in this pic.
We accumulated a few pictures, stuffed animals and blankets while here at PCH. It definitely helped to feel more at home and less like a hospital.
These were our 3 amazing primary nurses. We had so many of the great nurses at PCh but these girls had her the most. They knew her best and loved her so much. It was so sad to say good-bye to these amazing people! I knew my baby was in good hands when they were on duty. I even slept in quite a few days!
This is Dr. Carballo. She loves Kinzie and was so concerned for her. We appreciated everything she did for her. She listened to us and our concerns and explained things over and over. 
This is just a few of the amazing people that worked with Kinzie. They were all so gentle, loving, and genuinely concerned. Never have I seen so many dedicated medical professionals who truly know each patient. 
This is Rosalyn and her daughter Abby. We became good friends sitting side be side by our daughters day after day. We wish them the best. She gave Kinzie the cute outfit that she is wearing in this pic.
We accumulated a few pictures, stuffed animals and blankets while here at PCH. It definitely helped to feel more at home and less like a hospital.
These were our 3 amazing primary nurses. We had so many of the great nurses at PCh but these girls had her the most. They knew her best and loved her so much. It was so sad to say good-bye to these amazing people! I knew my baby was in good hands when they were on duty. I even slept in quite a few days! Thursday, April 8, 2010
Moms ... Did you know?
Ok all moms out there - Did you know there is a kids hotline out there for any question about kids ages birth to five years old?!!
Here it is - 1-877-705-KIDS. It's toll free and you acutally talk to a child development specialist for FREE!
Here it is - 1-877-705-KIDS. It's toll free and you acutally talk to a child development specialist for FREE!
Wednesday, April 7, 2010
Finally, some pics!
Here are some random pics from our stay at Hotel PCH! I just love how little they can make blood pressure cuffs, gowns, and oxygen masks! Kinzie also loved her baths. She fell asleep in almost all of them.
Thursday, March 25, 2010
As you may have heard, we are home! We were finally released from PCH on Wednesday March 17th - St. Patrick's Day! We are hoping for more than luck...we are hoping to help Kinzie start healing and to feel safe at home rather than being poked and prodded at the hospital. So far, pretty good. We were released basically because the hospital had done all that they can do for her at this point. Her UTI was gone and we still can not find anymore info regarding her unique movements so home we went.
I am trying to keep her to a schedule and run a household with a two year old but her schedules are rarely together or on time. I have to cathe her every 6 hours to alleviate the urine retention and feed her every 3-4 hours or when she decides she is hungry, and remember morning meds vs. evening meds. Since home, Kinzie has actually not done any of her head turning/facial droops that she did in the hospital. however, she does a different one that is just as scary for us. She gets rigid everywhere and frozen like that for seconds and at the same time thrusts her tongue out over and over. I know they sound like seizures but 8 EEGs told us they are not. So we wait and pray that they are not huring her. I'm hoping it's just part of the neurological irritability that she has and that her brain is figuring out how to root when hungry. Don't know.
She has also had a couple random days of wanting to eat but not able to keep it down. Then we go back to a couple normal days of eating and keeping it down. In short, we can't seem to get a routine yet. Every day is different and lots different.
We are currently headed back to the valley on April 6th for urology, neurology, and GI follow-ups as well as the urodynamic testing that we are hoping will explain the sudden onset of the urine retention.
I know I am way behind on pics so I will get to that soon. Just wanted to let you know that we are home and doing good so far. We saw the pediatrician soon after getting home and she is in the 54% for weight and 44% for height. We are still modifiying her sodium supplement as her levels remain a little low, which means 2 pokes so far to test her levels in her blood. It continually amazes me how resilient she is but I also have to remind myself that I would sleep as much as she does if I'd had the start she did. We hope to get her more awake in the next few weeks. Hopefully our appointments with Occupational Therapy will help.
I am trying to keep her to a schedule and run a household with a two year old but her schedules are rarely together or on time. I have to cathe her every 6 hours to alleviate the urine retention and feed her every 3-4 hours or when she decides she is hungry, and remember morning meds vs. evening meds. Since home, Kinzie has actually not done any of her head turning/facial droops that she did in the hospital. however, she does a different one that is just as scary for us. She gets rigid everywhere and frozen like that for seconds and at the same time thrusts her tongue out over and over. I know they sound like seizures but 8 EEGs told us they are not. So we wait and pray that they are not huring her. I'm hoping it's just part of the neurological irritability that she has and that her brain is figuring out how to root when hungry. Don't know.
She has also had a couple random days of wanting to eat but not able to keep it down. Then we go back to a couple normal days of eating and keeping it down. In short, we can't seem to get a routine yet. Every day is different and lots different.
We are currently headed back to the valley on April 6th for urology, neurology, and GI follow-ups as well as the urodynamic testing that we are hoping will explain the sudden onset of the urine retention.
I know I am way behind on pics so I will get to that soon. Just wanted to let you know that we are home and doing good so far. We saw the pediatrician soon after getting home and she is in the 54% for weight and 44% for height. We are still modifiying her sodium supplement as her levels remain a little low, which means 2 pokes so far to test her levels in her blood. It continually amazes me how resilient she is but I also have to remind myself that I would sleep as much as she does if I'd had the start she did. We hope to get her more awake in the next few weeks. Hopefully our appointments with Occupational Therapy will help.
Saturday, March 13, 2010
New Theory
Well, here is the latest theory and information. Kinzie possibly has a neurogenic bladder meaning that the neurons telling the muscles to contract are damaged. However, those neurons are located in the tail of the spinal cord and after a spinal ultrasound and spinal MRI we have found hers to be completely normal! Thank goodness. So where the damage would be from, we are not sure. Hopefully, urology can tell us where and/or if she even really has a neurogenic bladder on Monday. Her urine output was slowly increasing the last two days but is again low. We are currently wondering if her episodes are related to a distended bladder but after cathing her today immediately after an episode we found it to be moderately full. Urology wants to do testing after discharge. I'm trying to get them to do it before we leave to save us a trip back down. Makes sense to me!
Kinzie is hanging in there. She has been a little fussy these last couple days but is really a pretty quiet baby. She is waking up more and more, at least her eyes are more open. She has always been alert but with her eyes closed or peeking. We will test her eyes at 6 months to see how well she sees and focuses.
I have pictures to post but will have to do it later. Gotta run to feed her.
Thanks to everyone for your thoughts and prayers.
Kinzie is hanging in there. She has been a little fussy these last couple days but is really a pretty quiet baby. She is waking up more and more, at least her eyes are more open. She has always been alert but with her eyes closed or peeking. We will test her eyes at 6 months to see how well she sees and focuses.
I have pictures to post but will have to do it later. Gotta run to feed her.
Thanks to everyone for your thoughts and prayers.
Monday, March 8, 2010
Frustration
I am not sure what to think when your most favorite doctors and NP's say "We just don't know. Kinzie is a mystery," and "Kinzie, you sure make me feel that I'm not very smart." I'm so frustrated I could scream! I keep thinking "Ok, this makes sense. All the symptoms point to this. The test should come back positive." And then, it comes back negative or something totally random and different comes back positive, like the UTI.
The PH Probe test came back today and showed that her "episodes" do not correlate to reflux. The test did show that she has some reflux but not the severe reflux that we have felt to be the one constant in all of this mess. So, you know as much as we do. We are now back to ground zero, well, more like ground 1 or 2 since we do have some positives like:
1. Decrease in desat episodes and none all weekend.
2. She can manage her secretions and reflux and keep from throwing up most of the time.
3. Seems to be feeling better today after time on the anti-biotic.
4. Ate much better today, 3 full feeds out of 4 on the day shift.
5. Manages own temperature.
We are currently working on getting wet diapers. She's never had a problem with this but even now after being on the meds all weekend she is still having low urine output. She has always been a little heat rock and sweats like crazy so we have now brought in the Nephtology (sp?) doctors that check the kidneys. They seems to think that the kidneys are fine and that her low urine output is due to her getting rid of water other ways: sweat, spit, breathing. But then how do you explain great urine output with the same sweating for the first 5 weeks as opposed to this 1 last week. You guessed it...more testing.
To be continued...
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