Kinzie has been up and down as far as progress goes. She was extremely backed up last week due to all the rice we had been adding to her bottles. So we switched to oatmeal, added Karo and finally had to use suppositories. It took a day and a half to clean her out. In the mean time her throwing up had gotten worse. She was to the point of throwing up every bottle and most of it. So we put the tube back in at the same time we started the suppositories. It now appears that she was throwing up due to the constipation and being unable to move the milk out of her tummy. She had a couple good days after getting cleaned out but now is back to throwing up frequently. it is not large volumes but still too frequent and she is still fed only via NG tube. So what now? I'm not sure.
The good news is that we had some progress on Tuesday at her last doctor's visit. She was able t take off the oxygen and we are currently just monitoring her color change to see if she can really do with out it. So far so good but does seem pale at times. Don't know if increase throw up could be related.
She is now 10 pounds 6 oz. Up 1 oz. Good but way too slow of growth. She is now 23 inches long. She is still on the apnea monitor. We meet with that team next trip to PCH in May to see if we will continue to use it.
My mom was here last week and was an amazing help. It is so exhausting to not only due all her cares but also try to troubleshoot them and think of new things to try and new ideas to rule out. Thanks Mom! We MISS you! FYI: anyone who would like to come visit, feel free! lol
I did finally get pics taken in the Easter dresses that my mom bought but will post later. We have also decided to bless Kinzie on May 2nd. You are all invited. lol
Please keep her in your prayers and us that we will figure out how to help her grow. We will begin having a development therapist come in each week to help with alertness when awake, vision (tracking), and another with eating/nutrition issues. I look forward to one-on-one help and pray for guidance and answers!
2 comments:
Hi Kara, just checking in on you and Kinzie, I am glad things in some areas are looking better, it must be nice to not have the oxygen on all day. She is in our prayers as are you, she is one special little lady and you are one special momma to be entrusted with her care. Thanks for the updates.
We are praying for you and the family. I noticed with Ashlyn that before I had her on the lactose free formula ( when she was gassy) and then until she got used to the formula (no longer backed up) that she spit up a lot more than she does now. So I am with you that if they are having tummy issues there is nowhere for their food to go but back up.
Sorry that the progress has been slow. Being off the oxygen must be a huge step forward right! We will keep you in our prayers and really wish we could be there for her blessing.
Love ya
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